00:00:01:06 - 00:00:05:04 Part 2 is a quick intro to disability justice. 00:00:05:14 - 00:00:10:05 So in about 20 minutes you will hopefully have some preliminary 00:00:10:06 - 00:00:13:11 thoughts on the importance of disability justice in a system. 00:00:16:15 - 00:00:18:04 The current slide 00:00:18:04 - 00:00:21:04 shows a somewhat famous cartoon drawn by 00:00:21:16 - 00:00:24:02 Craig Froehle in 2012. 00:00:24:18 - 00:00:28:09 On the left there's three kids trying to watch a baseball game, 00:00:28:19 - 00:00:31:08 but there's a fence blocking the view of some of them. 00:00:32:19 - 00:00:34:16 There's a tall kid, a medium height 00:00:34:16 - 00:00:37:19 kid in the middle and a really short kid, 00:00:37:19 - 00:00:39:18 and there are three crates. 00:00:39:18 - 00:00:42:19 So each kid got one crate, 00:00:42:19 - 00:00:45:09 making the tall kid taller, 00:00:45:09 - 00:00:48:08 allowing the middle height kid to see over the fence, 00:00:49:05 - 00:00:53:09 and not giving the shortest kid enough of a boost to see over the fence yet. 00:00:54:15 - 00:00:55:16 So on the left, 00:00:56:18 - 00:01:00:04 two crates were wasted resources 00:01:00:14 - 00:01:03:17 because they didn't help anybody. 00:01:04:03 - 00:01:07:02 And this shows what happens when everyone is 00:01:07:02 - 00:01:10:05 given the same tools to start with, no matter what they need. 00:01:12:11 - 00:01:14:10 On the right side of the graphic 00:01:14:10 - 00:01:17:11 now, the same three kids exist 00:01:18:01 - 00:01:22:10 with the same number of resources, which are the three crates, 00:01:23:05 - 00:01:26:06 but they are allocated according to what 00:01:26:19 - 00:01:29:16 each kid needs, 00:01:29:16 - 00:01:32:19 so that all three kids end up being able to see over the fence. 00:01:33:16 - 00:01:36:09 Importantly, please notice 00:01:36:19 - 00:01:39:06 that meeting everyone's needs 00:01:41:06 - 00:01:43:17 didn't require more 00:01:44:03 - 00:01:47:11 total resources, just a reallocation. 00:01:48:06 - 00:01:50:17 And I mention that because 00:01:51:05 - 00:01:54:02 if we could actually "workshop" in this workshop, 00:01:54:12 - 00:01:58:08 I would have asked you all early on to share 00:01:59:18 - 00:02:01:18 what you've learned in your respective settings 00:02:01:18 - 00:02:06:12 about why a space or event is not made accessible. 00:02:08:07 - 00:02:11:06 And check this out: As I 00:02:11:06 - 00:02:14:14 read your minds with my magical powers and detect 00:02:14:14 - 00:02:19:19 that most of you probably would have said that someone of a higher pay grade 00:02:19:19 - 00:02:23:00 than you has said that improving accessibility 00:02:23:08 - 00:02:26:11 is cost prohibitive. 00:02:26:17 - 00:02:28:05 And we are going to circle 00:02:28:05 - 00:02:30:01 back to that later. 00:02:31:15 - 00:02:32:19 The left side 00:02:32:19 - 00:02:36:05 depicts equality of opportunity, 00:02:36:09 - 00:02:39:06 and the right side depicts equality of outcome. 00:02:39:17 - 00:02:43:07 And those are two very different ways of defining 00:02:43:07 - 00:02:45:16 what equality means. 00:02:46:15 - 00:02:51:04 It's a lot like the difference between disability 00:02:51:04 - 00:02:54:05 rights and disability justice. 00:02:55:08 - 00:02:59:16 Remember, justice always acknowledges power, privilege and access. 00:02:59:16 - 00:03:02:11 Disability rights and disability justice are night and day. 00:03:04:06 - 00:03:07:04 And we are talking about disability justice, 00:03:08:04 - 00:03:10:10 which is a framework articulated 00:03:10:10 - 00:03:13:13 initially by three queer women of color, 00:03:14:04 - 00:03:17:02 Patricia "Patty" Berne, Mia Mingus 00:03:17:02 - 00:03:20:10 and the late Stacy Milbern in 2005. 00:03:22:00 - 00:03:25:19 And there is so much wisdom 00:03:26:15 - 00:03:29:16 in the disability justice arena. 00:03:29:16 - 00:03:34:02 I've linked to a bunch of resources on my website 00:03:34:09 - 00:03:37:00 from many different folks. 00:03:37:10 - 00:03:39:02 Please read their work. 00:03:39:02 - 00:03:40:14 Please buy their books. 00:03:40:14 - 00:03:43:02 Buy This hoodie, 00:03:43:05 - 00:03:45:08 which is from the Disability Visibility 00:03:45:08 - 00:03:48:12 Project led by Alice Wong. 00:03:48:15 - 00:03:53:02 If you are not economically privileged, then follow the links 00:03:53:02 - 00:03:56:06 to some of the YouTube videos and the blogs and 00:03:57:13 - 00:03:59:10 all the free knowledge they put out there. 00:03:59:10 - 00:04:03:19 Because like many of us disabled folks, they are gifted and generous 00:04:04:04 - 00:04:09:00 and generally underemployed. 00:04:09:06 - 00:04:12:12 And I don't know if you know this, but most labor in justice 00:04:12:12 - 00:04:14:15 work is uncompensated. 00:04:14:15 - 00:04:17:17 But if we can support that labor, it's really important to do so. 00:04:19:03 - 00:04:19:13 All right. 00:04:20:08 - 00:04:25:01 We are going to sort of flip through the disability justice framework, 00:04:25:07 - 00:04:28:01 and then I think we can talk about what you can do with all this. 00:04:29:00 - 00:04:32:05 The first three principles are intersectionality, 00:04:32:12 - 00:04:37:03 leadership of those most impacted, and anti-capitalist politics. 00:04:38:04 - 00:04:38:13 And to this 00:04:38:13 - 00:04:42:09 list, I would just emphasize that in any disability justice work, 00:04:42:18 - 00:04:46:06 if everyone on your board or leadership 00:04:46:06 - 00:04:49:10 is a cisgender White person, 00:04:50:03 - 00:04:53:11 you're not doing disability justice. 00:04:56:19 - 00:04:57:07 Our next 00:04:57:07 - 00:05:00:05 set of principles includes cross movement solidarity, 00:05:00:11 - 00:05:03:00 recognizing wholeness, and sustainability. 00:05:04:07 - 00:05:08:01 And what I will highlight here is regarding cross movement solidarity, 00:05:08:10 - 00:05:10:18 because there are disabled folks in every group, 00:05:11:08 - 00:05:14:05 so it is a sincere solidarity, 00:05:14:11 - 00:05:17:02 but it does make for two key challenges. 00:05:17:10 - 00:05:20:09 On the one hand, the White disability communities 00:05:21:00 - 00:05:23:07 need to be confronted about their racism. 00:05:24:17 - 00:05:27:00 And on the other hand, 00:05:27:00 - 00:05:30:11 a lot of the other justice movements 00:05:31:02 - 00:05:33:08 need to be confronted about their ableism. 00:05:36:04 - 00:05:38:08 I'm telling myself that you're 00:05:38:08 - 00:05:41:04 all going to do more reading on your own. 00:05:41:12 - 00:05:43:01 as I speed through some of these 00:05:44:02 - 00:05:47:02 but the last four principles here, commitment to cross disability 00:05:47:02 - 00:05:52:10 solidarity, that's about what we do in our own house, so to speak. 00:05:52:10 - 00:05:53:15 It's making sure we don't 00:05:53:15 - 00:05:57:03 form hierarchies within disability spaces because that can happen. 00:05:57:15 - 00:06:00:13 So everyone who experiences ableism 00:06:00:13 - 00:06:03:04 needs to be in solidarity. 00:06:03:18 - 00:06:05:17 Collective liberation 00:06:05:17 - 00:06:08:05 is a sort of grounded, 00:06:09:06 - 00:06:13:15 inspirational mapping principle for the work of social movements, 00:06:13:15 - 00:06:17:18 because liberation has always required acknowledging 00:06:17:18 - 00:06:19:12 the collective. 00:06:25:02 - 00:06:27:02 These middle two principles of interdependence 00:06:27:02 - 00:06:30:02 and collective access are my two personal favorites. 00:06:31:12 - 00:06:34:06 Interdependence is 00:06:34:06 - 00:06:38:00 particularly relevant for chaplains in senior living communities, 00:06:38:17 - 00:06:41:18 which tend to heavily advertise 00:06:41:18 - 00:06:45:14 so-called independent living as what they offer. 00:06:47:02 - 00:06:48:05 And it's not their fault. 00:06:48:05 - 00:06:49:16 I do not blame them. 00:06:49:16 - 00:06:54:07 They do their market research, and that's the brochure that sells contracts. 00:06:55:05 - 00:06:58:14 There's a lot of public discourse about this within 00:06:59:15 - 00:07:01:18 gerontology on the association 00:07:01:18 - 00:07:04:07 between independence and accomplishment. 00:07:06:05 - 00:07:08:06 And, you know, the senior living brochures I'm talking about, 00:07:08:06 - 00:07:13:07 they describe residents and when they will someday reluctantly need assistance 00:07:14:01 - 00:07:15:19 and that they'll be able to transition 00:07:15:19 - 00:07:19:08 from independent living to assisted living and stuff like that. 00:07:20:00 - 00:07:23:08 And I mean, look, life is assisted living. 00:07:24:09 - 00:07:25:14 We are... 00:07:29:15 - 00:07:32:16 we really literally... 00:07:32:16 - 00:07:35:03 we all need one another. 00:07:35:06 - 00:07:38:19 Every individual person's wellbeing is inextricably connected 00:07:38:19 - 00:07:41:15 to that of their neighbors. 00:07:43:12 - 00:07:44:06 In contrast 00:07:44:06 - 00:07:48:13 to independence, interdependence is about caring for one another. 00:07:49:17 - 00:07:54:12 And it's just real because nobody is independent. 00:07:54:12 - 00:07:56:05 That is not a thing. 00:07:56:05 - 00:07:57:09 We just say it sometimes. 00:07:57:09 - 00:07:58:12 It's not real. 00:07:59:18 - 00:08:02:14 As a disabled chaplain, when I was actively working as a chaplain, 00:08:04:01 - 00:08:06:06 I can remember how much relief 00:08:06:06 - 00:08:11:00 and peace I was able to give residents in senior living 00:08:11:09 - 00:08:15:06 when I gave them permission to stop 00:08:15:18 - 00:08:18:14 trying to pretend they're independent. 00:08:19:08 - 00:08:21:16 Because none of us is. 00:08:26:08 - 00:08:27:01 All right... 00:08:28:14 - 00:08:30:18 Last one with collective 00:08:33:09 - 00:08:33:11 access. 00:08:33:11 - 00:08:33:15 Collective access... 00:08:33:15 - 00:08:39:03 You know, everyone just assumes that people have certain needs 00:08:39:17 - 00:08:42:07 and that together 00:08:42:07 - 00:08:44:11 we're going to figure out how to get things done. 00:08:46:02 - 00:08:48:07 Sharing access needs 00:08:48:07 - 00:08:51:02 in disability spaces isn't the big 00:08:52:18 - 00:08:56:00 vulnerability it is in the rest of the world, 00:08:56:16 - 00:09:00:00 because we know that our strengths 00:09:00:19 - 00:09:05:03 are recognized and valued with collective access. 00:09:05:09 - 00:09:06:11 It's like 00:09:07:00 - 00:09:09:02 teamwork and community 00:09:10:06 - 00:09:13:16 wrapped in shared responsibility 00:09:13:16 - 00:09:17:11 and all the good, noncompetitive ways that only 00:09:17:11 - 00:09:20:14 crip spaces know how to be. 00:09:20:16 - 00:09:21:10 I mean, 00:09:25:05 - 00:09:26:04 nobody feels the need 00:09:26:04 - 00:09:29:09 to apologize for having an impairment. 00:09:29:09 - 00:09:32:11 People don't have to beg for accommodations. 00:09:32:11 - 00:09:35:06 Disabled people 00:09:36:07 - 00:09:38:03 are not a burden. 00:09:38:03 - 00:09:42:12 Lack of accessibility is a burden, and we will share it... 00:09:43:15 - 00:09:45:13 for one another. 00:09:46:14 - 00:09:48:18 Ableism is a burden in the same way, 00:09:50:03 - 00:09:50:15 and together 00:09:50:15 - 00:09:53:09 we will figure out how to get folks' needs met. 00:09:55:02 - 00:09:57:19 Collective access is beautiful. 00:09:58:12 - 00:10:02:00 And I could talk about that for a bit, but 00:10:04:08 - 00:10:07:07 moving on, the image on the present slide is of a White man 00:10:07:07 - 00:10:11:13 wearing a casual button down shirt and glasses with neatly groomed 00:10:12:14 - 00:10:14:18 gray head and facial hair, 00:10:14:18 - 00:10:18:02 shrugging his shoulders, saying, "That all sounds fine and good, 00:10:18:09 - 00:10:21:15 but what can I actually do with this in my setting?" 00:10:25:14 - 00:10:28:12 I've named him Donald, by the way. 00:10:28:12 - 00:10:31:09 And I guess that's a fair question, Donald, 00:10:33:06 - 00:10:36:03 although I just gave some ideas over the past 00:10:37:02 - 00:10:39:17 few slides, but here's another one. 00:10:39:17 - 00:10:43:09 In fact, it is the very first thing you can start doing tomorrow. 00:10:44:01 - 00:10:47:06 And we can do it in a minute right here, right now. 00:10:47:15 - 00:10:49:13 And it is to ask yourself 00:10:49:13 - 00:10:53:06 what I consider to be the first question of disability justice: 00:10:56:08 - 00:10:59:08 Who is not here? 00:11:03:15 - 00:11:07:04 This little question is about access 00:11:08:05 - 00:11:12:15 and the answers and honest explanations for the answers 00:11:13:00 - 00:11:15:00 are about power and privilege. 00:11:21:04 - 00:11:25:00 So we could ask "Who is not here?" 00:11:25:00 - 00:11:27:03 in this 90 minute conference 00:11:27:03 - 00:11:30:07 session with us right now. 00:11:30:19 - 00:11:32:10 The image on the current slide 00:11:32:10 - 00:11:35:13 shows the same gray haired man as before, Donald. 00:11:36:02 - 00:11:38:14 In this photo, he's looking pensively off to the side, and 00:11:38:14 - 00:11:41:07 apparently he found himself a cup of coffee somehow. 00:11:43:08 - 00:11:44:08 In the interest of time, 00:11:44:08 - 00:11:48:13 I'm going to jump ahead to share the tally 00:11:48:13 - 00:11:52:14 from an informal Facebook poll I conducted about this question. 00:11:53:11 - 00:11:57:01 Because "researchers are gonna research"... 00:11:57:16 - 00:12:02:16 I asked the question: Are you attending this year's APC/ACPE Conference May 10-12? 00:12:03:15 - 00:12:07:13 I asked in a group of about 70 disabled chaplains and 29 responded. 00:12:08:12 - 00:12:12:13 Their responses are sorted here by popularity with the most common 00:12:12:13 - 00:12:16:03 response being no - too expensive, followed by 00:12:16:03 - 00:12:18:11 no - cannot get time off work. 00:12:19:09 - 00:12:23:05 And those two reasons alone account for more than half of why the disabled 00:12:23:05 - 00:12:27:19 chaplains, of those who responded, said they would not be here. 00:12:29:11 - 00:12:31:05 A few said they were going to 00:12:31:05 - 00:12:34:16 be here and two are here despite access difficulties. 00:12:35:03 - 00:12:36:17 By the way, hello friends. 00:12:36:17 - 00:12:39:09 Please share your thoughts in the group later today, by the way. 00:12:39:13 - 00:12:41:15 I would love to hear from you. 00:12:41:15 - 00:12:42:15 But I mean... 00:12:44:06 - 00:12:45:12 I'm not going on about this. 00:12:45:12 - 00:12:48:17 This is what it is and I share it with you all in case anyone in attendance 00:12:48:17 - 00:12:51:09 has any interest in justice within APC and ACPE. 00:12:53:01 - 00:12:54:05 Because 00:12:55:14 - 00:12:56:13 again, 00:12:58:14 - 00:13:00:16 when you ask: Who is not here? 00:13:01:12 - 00:13:03:13 That little question is about access. 00:13:03:13 - 00:13:06:14 And the answers and honest explanations for them 00:13:06:14 - 00:13:09:14 are about power and privilege. 00:13:09:19 - 00:13:12:08 If you want to do disability justice? 00:13:14:02 - 00:13:14:13 Well, 00:13:15:12 - 00:13:17:19 you will have your action steps 00:13:17:19 - 00:13:20:10 right in front of you if you want them, my friends, 00:13:21:03 - 00:13:24:03 starting with some honest answers to that first question. 00:13:25:07 - 00:13:28:04 And with that? 00:13:28:04 - 00:13:32:04 I will wrap up Part 2 and open for your Thoughts? 00:13:32:11 - 00:13:35:12 Reactions? Comments? Questions?